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November 28, 2006 , Day 42


Whoa! Not so fast! Whenever you think you know what's going on they throw a change up at you. I think one of my coworkers told Tim Traverso where I am and he sent an agent provoteur to make my life miserable. Today they told me that not only do I need to eat, but I need to eat 1200 calories. Not only do I need to drink, but I need to drink at least 2 liters. Since they haven't been measuring it well, they will have to start counting. So we set out on this new task. At lunch Menchie made me some soup and was going to blend it so I could eat it. The manager said we couldn't use the hospital blender. So we decided to get one for our room, and they told us they didn't think that would be allowed. The food at the hospital is inedible for me in spite of their best efforts. I think the chicken noodle soup I ordered today was some kind of turkey vegetable soup with extra meat thrown in. Pretty horrible tasting and felt like 60 grit sandpaper on my tongue. They have been pushing nutrition drinks on me and they still don't get it. They keep saying there is no dairy in them. The nutritionist actually looked at the label and discovered casein in one, and then sent up another drink she assured me was dairy free because it was clear. The third ingredient was whey. I guess I could go on for hours. My coworkers know how calm and collected I am when faced with impossible tasks. I started having chest pain when I was talking to the nutritionist. She kind of faded away while the nurse checked me out. I rested and relaxed and was ok. My blood pressure was pretty high though!

Enough garbage. There were also positive things today. I did drink way over 2 liters, so that shouldn't be a problem. The discharge nurse was interviewing me while I was walking with the physical therapist. I circled the atrium 4 times without a walker. I just used Menchie for support. Pretty soon I will be dancing around the promenade, or noodling up Torrey. The physical therapist then proceeded to really wear me out with a bunch of resistance exercises. That was fun. Not much else going on. No transfusions.

Someone showed up with food for room 382. That is my room. It was not addressed to a name, just the room. We didn't know the person and didn't recognized the name of the sender. We cannot accept food from outside right now. Especially if the source is unknown. If someone reading this update sent the food, please accept our apology for not accepting it. For everyone else, please don't send any food without checking with us first. Hey, maybe it was from Tim Traverso....

On the medical front, today they think the rash on my arms might be GVHD. It is spreading to my legs now.

Blood levels: I am happy to see those platelets continue to climb!

Lab Results

Blood Cell Type

Normal Low





WBC 4.5 5.2 5.7 5.6 5.9
RBC 4.3 2.42 2.33 2.84 2.84
HGB 13.9 8.2 7.9 9.1 9.1
PLT 130 24 30 32 34

Take care!

Ted and Menchie

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