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January 26, 2004 DAY #90


We are back in San Diego for a visit again. Not much planned, so we will probably just try to relax and enjoy the dogs and doing a few things around the house. The weekend was a little challenging in ways. My digestive system was acting up. Things have cleared up by now, but I have gained some weight because of it. The doctor kind of shrugged it off. We were going to go on another hike on Sunday, but we decided not to risk it, with me trying to find a restroom every few minutes. I actually slept in on Sunday. I was very fatigued, and not sleeping well, so I had breakfast in bed, told the cleaning ladies to leave us alone and I slept all morning. Menchie woke me up for my medicines. I hope all you guys who yelled at me for not taking it easy last Thursday are happy now! Menchie and I will be returning to Duarte on Wednesday. Today is our first month wedding anniversary!!! To celebrate we had a doctors appointment and drove to San Diego!

On the medical front, things continue going well. Its getting boring even. The doctor is still very happy with my numbers. The rash on my hands and chest have faded slightly. I was afraid that my intestinal problems were an indication of more severe GVH, but the doctor didn't think so. The Thursday Bone Marrow Biopsy has been scheduled. I have some anxiety about that. What if the results are not positive? Not much chance of that, I don't think. It also really hurts, and caused some back problems last time. What a wimp I have become!!! Must be the drugs. Speaking of drugs, the doctor reduced my magnesium to one pill a day, and reduced the prednisone to 30mg per day to 27.5mg. I keep asking about this magical day 100. I asked the doctor why I needed to wear a mask on day 99 but not on day 100 if I was still immunodepressed. He just said I would still need to be careful. Not much information. He said I could go to restaurants and eat if I want to, as long as I am careful.

Lab Results

Blood Cell Type

Normal Low





WBC 4.5 5.3 6.6 6.2 6.4
RBC 4.20 3.87 3.83 3.96 4.04
HGB 13.0 12.9 13.0 13.4 12.9
PLT 130 132 146 151 154

Happy Anniversary to us! Next Update on Thursday!


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